Factors influencing the participation of adolescents and young adults with a congenital heart disease in a transition education program: A prospective multicentre controlled study

Oscar Werner (1) , Hamouda Abassi (2) , Kathleen Lavastre (2) , Sophie Guillaumont (1, 2) , Marie-Christine Picot (2) , Chris Serrand (3, 2) , Yves Dulac (4, 5) , Nathalie Souletie (5) , Philippe Acar (5) , Charlène Bredy (2) , Pascal Amedro (6, 2)

1 Service de cardiologie Pédiatrique [Montpellier]
2 CHRU Montpellier - Centre Hospitalier Régional Universitaire [Montpellier]
3 Department of Medical Information, La Colombière Hospital, Montpellier, France
4 Service Cardiologie pédiatrique [CHU Toulouse]
5 CHU Toulouse - Centre Hospitalier Universitaire de Toulouse
6 PhyMedExp - Physiologie & médecine expérimentale du Cœur et des Muscles [U 1046]

Transition education programs dedicated to adolescents and young adults with congenital heart disease (CHD) aim to facilitate transfer to adult cardiology and bring more autonomy to teenagers. This prospective controlled multicentre study analysed the factors influencing the participation in a transition education program.

Mots clés: Attitudes; Congenital; Health knowledge; Heart defects; Patient education as topic; Practice; Quality of life; Transition to adult care

Domaines: Sciences du Vivant [q-bio]

Oscar Werner, Hamouda Abassi, Kathleen Lavastre, Sophie Guillaumont, Marie-Christine Picot, et al.. Factors influencing the participation of adolescents and young adults with a congenital heart disease in a transition education program: A prospective multicentre controlled study. Patient Education and Counseling, 2019, ⟨10.1016/j.pec.2019.06.023⟩. ⟨hal-02172050⟩