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L’expérience patient : la construction des compétences des malades atteints d’hémopathies malignes par les dispositifs hospitaliers

Abstract : This research focuses on the experience of patients with malignant hemopathies. Based on a qualitative survey combining ethnographic observations and interviews, it aims to describe the way mechanisms of a cancer treatment center and health professionals build skills around the experience of being ill. On the one hand, this work identifies the methods of coordination between healthcare providers and patients in order to understand the different contexts and processes according to which patients' competences are updated, put on hold, reinforced, transformed and reframed by the hospital systems (consultations, TPE program, telephone follow-up system, etc.). On the other hand, we examine the trajectory of illness (in the sense of Anselm L. Strauss) of patients in hospital mechanisms, in relation to the processes of selection and self-regulation of patients, which underlie their commitment (in the sense of Howard S. Becker) to an educational approach. The aim is to provide a sociological perspective on the way patients do or do not engage in these mechanisms and fields of competences. We wish to describe the effects of the plurality of competences, social characteristics (age, sex, socio-economic and professional category, family situation, etc.) and of the trajectory of illness (moment in the care pathway and breaks in relation to the evolution of the illness, impact on the professional career, on family life, etc.) of the patient who bears them, on his or her ways to act and in particular his or her commitment to hospital mechanisms over a longer or shorter term.
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https://hal.archives-ouvertes.fr/tel-03613267
Contributor : Charlotte Bruneau Connect in order to contact the contributor
Submitted on : Friday, March 18, 2022 - 12:43:29 PM
Last modification on : Wednesday, June 1, 2022 - 4:18:28 AM

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  • HAL Id : tel-03613267, version 1

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Charlotte Bruneau. L’expérience patient : la construction des compétences des malades atteints d’hémopathies malignes par les dispositifs hospitaliers. Sociologie. Université de Toulouse III Paul Sabatier, 2021. Français. ⟨tel-03613267⟩

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