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The subjective value of a life with Down syndrome: Evidence from amnocentesis decision

Abstract : Using a simple theoretical decision model and an original database, we were able to elicit thedistribution of the utility value of having a child with Down syndrome for a large sample of Frenchpregnant women (n = 28, 341) between 2003 and 2007. We found that, on a scale where the value ofa fetal death is 0 and the value of a healthy child is 1, the mean value for a child with Down syndromeis about −0.6. Assuming that the policymaker used the same decision model as the women, we inferfrom the French amniocentesis reimbursement regulation an implicit social value for a child withDown syndrome of −2.5. We conclude from our study that the policymaker is more likely to preventthe birth of children with Down syndrome than French women themselves.
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https://hal.archives-ouvertes.fr/hal-03352871
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Submitted on : Thursday, September 23, 2021 - 3:40:32 PM
Last modification on : Wednesday, November 17, 2021 - 12:33:45 PM

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  • HAL Id : hal-03352871, version 1

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Thibault Gajdos, Clémentine Garrouste, Pierre-Yves Geoffard. The subjective value of a life with Down syndrome: Evidence from amnocentesis decision. 2021. ⟨hal-03352871⟩

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