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L’autisme à Marseille nord : Inégalités territoriales, précarité et pénurie de services publics.

Abstract : Objective: In order to illustrate the obstacles to healthcare and schooling for children with autism, we chose to explore the experiences of families and the systems implemented to accompany children and their parents in the northern districts of Marseille, where precarious situations are numerous and the shortage of places and means affects both the public and the private sectors. Methods and results: Interviews conducted with 26 families and 18 professionals showed that the parents were overall satisfied with health, medical and social services when they had access to them. All of them noted difficulties encountered for school inclusion, and they all stressed the weariness, the stress and the deterioration in quality of life for the family as a whole. The moral obligation to use intensive educational programmes as early as possible, often generates feelings of guilt among parents who cannot afford this type of service. Conclusion: The present policy, consisting in favouring services rather than specialised establishments and in promoting ever-greater implication on the part of parents leads to a work overload for families, with professional and financial consequences that are particularly great for the mothers, in particular those in precarious situations.
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https://hal.archives-ouvertes.fr/hal-02103391
Contributor : Brigitte Chamak <>
Submitted on : Thursday, April 18, 2019 - 12:30:50 PM
Last modification on : Tuesday, April 14, 2020 - 2:41:02 PM

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B. Chamak. L’autisme à Marseille nord : Inégalités territoriales, précarité et pénurie de services publics.. Neuropsychiatrie de l'Enfance et de l'Adolescence, Elsevier Masson, 2019, ⟨10.1016/j.neurenf.2019.03.004⟩. ⟨hal-02103391⟩

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