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Communication Dans Un Congrès Année : 2018

Co-Designing the future of the cancer ambulatory care shift: An exploratory study of stakeholder needs

Résumé

Today, as a result of the political will to reduce congestion in hospital and the recent move toward outpatient care, an increasingly number of people with cancer are receiving care at home. This paper discusses a participatory project that entailed the conceptualization of an innovative healthcare concept for persons concerned by the French ambulatory care shift. Starting from the idea that the traditional home care services fail to anticipate the needs and wishes of this growing group, the goal of this project was to involve care receivers, relatives and other stakeholders (caregivers, policy makers, social workers, private medical practitioners, etc.) in defining and developing such a concept for the near future. Rooted in the principles of participatory design, the project consisted of a 2-year period of observation, workshops and participation in activities with more than 50 stakeholders in 3 French regions, in order to deepen the understanding of living with cancer, gain sensibility toward working with this population, and to learn how they are engaged in activities in non-institutional environments. Furthermore, this study aimed to inspire tools and design services through identifying aspects considered to be relevant for a subsequent design process. Preliminary findings revealed that the combined methods used in this study were fundamental to notice various details regarding the everyday life of care receivers, relatives and non-institutional practitioners, while ensuring that a design perspective was kept. Also, experiencing how a participatory project is structured (the project was led by 2 patient associations), and how people with varying abilities engage in several stages of the project raised important insights into the inclusion of people with chronic diseases in the design process.
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Dates et versions

hal-02048392 , version 1 (05-03-2019)

Licence

Paternité - Pas d'utilisation commerciale - Pas de modification

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  • HAL Id : hal-02048392 , version 1

Citer

Marine Royer. Co-Designing the future of the cancer ambulatory care shift: An exploratory study of stakeholder needs. Design4Health, Sheffield Hallam University, Sep 2018, Sheffield, United Kingdom. ⟨hal-02048392⟩

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