. Uk-cf-registry, Cystic Fibrosis Trust, 2008.

P. Burgel, G. Bellis, H. V. Olesen, L. Viviani, A. Zolin et al., Future trends in cystic fibrosis demography in 34 European countries, Eur Respir J, vol.46, p.25792639, 2015.

P. Moons, L. Bovijn, W. Budts, A. Belmans, and M. Gewillig, Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium, Circulation, vol.122, p.21098444, 2010.

C. T. Quinn, Z. R. Rogers, T. L. Mccavit, and G. R. Buchanan, Improved survival of children and adolescents with sickle cell disease, Blood, vol.115, p.20194891, 2010.

R. Hazra, G. K. Siberry, and L. M. Mofenson, Growing up with HIV: children, adolescents, and young adults with perinatally acquired HIV infection, Annu Rev Med, vol.61, p.19622036, 2010.

P. Michaud, J. C. Suris, and R. Viner, The adolescent with a chronic condition: epidemiology, developmental issues and health care provision [Internet]. World Health Organization, 2007.

M. E. Bauman, S. Kuhle, . Bruce-a-a.-k, L. Bolster, and M. P. Massicotte, The journey for adolescents and young adults with chronic conditions transitioning to adult care with successful warfarin management, Thromb Res, vol.141, p.27065202, 2016.

K. Javalkar, M. Johnson, A. V. Kshirsagar, S. Ocegueda, R. K. Detwiler et al., Ecological Factors Predict Transition Readiness/Self-Management in Youth With Chronic Conditions, J Adolesc Health Off Publ Soc Adolesc Med, vol.58, p.26707228, 2016.

A. Van-staa, H. A. Van-der-stege, S. Jedeloo, H. A. Moll, and S. R. Hilberink, Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors, J Adolesc Health Off Publ Soc Adolesc Med, vol.48, p.21338902, 2011.

L. F. Zhang, J. Ho, and S. E. Kennedy, A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease, BMC Pediatr, vol.14, p.24405982, 2014.

J. R. Mann, J. A. Royer, S. Mcdermott, J. W. Hardin, O. Ozturk et al., Hospitalizations and emergency room visits for adolescents and young adults with muscular dystrophy living in South Carolina, Muscle Nerve, vol.52, p.25665090, 2015.

J. R. Mann, J. A. Royer, M. A. Turk, S. Mcdermott, M. M. Holland et al., Inpatient and emergency room visits for adolescents and young adults with spina bifida living in South Carolina, PM R, vol.7, p.25511690, 2015.

S. M. Shankar, P. G. Arbogast, E. Mitchel, W. O. Cooper, W. C. Wang et al., Medical care utilization and mortality in sickle cell disease: a population-based study, Am J Hematol, vol.80, p.16315251, 2005.

B. G. Hemker, D. C. Brousseau, K. Yan, R. G. Hoffmann, and J. A. Panepinto, When children with sickle-cell disease become adults: lack of outpatient care leads to increased use of the emergency department, Am J Hematol, vol.86, p.21815184, 2011.

E. Cohen, S. Gandhi, A. Toulany, C. Moore, L. Fu et al., Health Care Use During Transfer to Adult Care Among Youth With Chronic Conditions, Pediatrics, vol.137, p.26933203, 2016.

M. J. Okumura, A. O. Hersh, J. F. Hilton, and D. S. Lotstein, Change in health status and access to care in young adults with special health care needs: results from the 2007 national survey of adult transition and health, J Adolesc Health Off Publ Soc Adolesc Med, vol.52, p.23298998, 2013.

J. G. Berry, J. Rodean, M. Hall, E. R. Alpern, P. L. Aronson et al., Impact of Chronic Conditions on Emergency Department Visits of Children Using Medicaid, J Pediatr, vol.182, p.27979584, 2017.

P. Tuppin, J. Rudant, P. Constantinou, C. Gastaldi-ménager, A. Rachas et al., Value of a national administrative database to guide public decisions: From the système national d'information interrégimes de l'Assurance Maladie (SNIIRAM) to the système national des données de santé (SNDS) in France, Rev Epidemiol Sante Publique, p.28756037, 2017.

C. M. Duflos, K. Solecki, L. Papinaud, V. Georgescu, F. Roubille et al., The Intensity of Primary Care for Heart Failure Patients: A Determinant of Readmissions? The CarPaths Study: A French RegionWide Analysis, PLOS ONE, vol.11, p.27727296, 2016.
URL : https://hal.archives-ouvertes.fr/hal-01799678

A. Weill, M. Dalichampt, F. Raguideau, P. Ricordeau, P. Blotière et al., Low dose oestrogen combined oral contraception and risk of pulmonary embolism, stroke, and myocardial infarction in five million French women: cohort study, BMJ, vol.353, p.27164970, 2016.

P. Blin, C. Dureau-pournin, A. Foubert-samier, A. Grolleau, E. Corbillon et al., Parkinson's disease incidence and prevalence assessment in France using the national healthcare insurance database, Eur J Neurol, vol.22, p.25389031, 2015.

S. Bouée, C. Emery, A. Samson, J. Gourmelen, C. Bailly et al., Incidence of venous thromboembolism in France: a retrospective analysis of a national insurance claims database, Thromb J, vol.14, p.26900350, 2016.

, Mortality rates by sex and age in 2014, Ined-Institut national d'études démographiques, p.31, 2016.

, Centers for Disease Control and Prevention, 2015.

H. Gleeson, J. Davis, J. Jones, O. Shea, E. Clayton et al., The challenge of delivering endocrine care and successful transition to adult services in adolescents with congenital adrenal hyperplasia: experience in a single centre over 18 years, Clin Endocrinol (Oxf), vol.78, p.23009615, 2013.

F. P. Busse, P. Hiermann, A. Galler, M. Stumvoll, T. Wiessner et al., Evaluation of patients' opinion and metabolic control after transfer of young adults with type 1 diabetes from a pediatric diabetes clinic to adult care, Horm Res, vol.67, p.17065819, 2007.

A. Rachas, D. Lefeuvre, L. Meyer, F. A. Mahlaoui, N. De-la-rochebrochard et al., Evaluating Continuity During Transfer to Adult Care: A Systematic Review, Pediatrics, vol.138, p.27354452, 2016.

O. M. Akchurin, M. L. Melamed, B. L. Hashim, F. J. Kaskel, D. Rio et al., Medication adherence in the transition of adolescent kidney transplant recipients to the adult care, Pediatr Transplant, vol.18, p.24820521, 2014.

, Excess mortality and hospitalizations in transitional-age youths with a long-term disease

. Plos-one-|, , vol.13, 2018.

R. A. Annunziato, S. Emre, B. Shneider, C. Barton, C. A. Dugan et al., Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services, Pediatr Transplant, vol.11, p.17663682, 2007.

N. Bollegala, H. Brill, and J. K. Marshall, Resource utilization during pediatric to adult transfer of care in IBD, J Crohns Colitis, vol.7, p.22677118, 2013.

S. M. Samuel, A. Nettel-aguirre, A. Soo, B. Hemmelgarn, M. Tonelli et al., Avoidable hospitalizations in youth with kidney failure after transfer to or with only adult care, Pediatrics, vol.133, p.24664091, 2014.

M. Mcpheeters, A. M. Davis, J. L. Taylor, R. F. Brown, S. A. Potter et al., Transition Care for Children With Special Health Needs

, Agency for Healthcare Research and Quality (US), 2014.

R. Horton and A. Ceschia, France: a philosophy for health, The Lancet, vol.387, issue.16, pp.30243-30247, 2016.

A. Rachas, P. Tuppin, L. Meyer, B. Falissard, F. A. Mahlaoui et al., Excess mortality and hospitalizations in transitional-age youths with a long-term disease: A national population-based cohort study, PLoS ONE, vol.13, issue.3, p.29534076, 2018.
URL : https://hal.archives-ouvertes.fr/hal-01989880

, Fig 2. Evolution of the incidence of hospitalization in short-stay units between 14 and 21 years of age, vol.119, p.61

,

. Plos-one-|, , 20182-04-10.