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Déploiement de la démocratie sanitaire : point d’étape et typologie de la prise en considération de la réflexivité collective des malades et autres personnes concernées (Version longue, texte mis à jour en Mars 2018)

Abstract : Context: There is now a proliferation of discourses on the development of health democracy based on the deployment of situations or cooperation mechanisms associating patients and relatives with multiple health professionals. Objective: Beyond these general discourses, how can we specify the nature and place of reflexivity - particularly collective - of patients and their families today? In response, this contribution aims to provide a means of reporting (now and in the coming years) on situations that can be described as "collective reflective cooperation" (CRC). This term refers to situations in which patients and concerned persons co-develop shared knowledge together, which may for example concern the construction and management of their therapies. Method: The work is based on two complementary works: bibliometric studies in the international PubMed database based on engagement, involvement and participation and the construction of a typology based on levels of reflexivity. Results: In the PubMed medical bibliographic database, the number of studies mentioning patient engagement is increasing, but refers almost exclusively to individual cooperation, aimed at better compliance through a form of empowerment or consideration as part of a patient-centred process to improve the ergonomics of treatments; this growth is increasingly linked with e-Health or mobile health tools. In fact, even if there are CRC cases concerning the representation of uses, education and mediation or even therapies, they are only very rarely visible in PubMed. Conclusion: The sharing of a typology of protocols based on the characteristics of relationships with patients (individual or collective, high or low reflexivity) becomes essential to the study of the progress of health democracy. Already, the creation of a first typology allows a double observation: on the one hand, we observe today CRC with high use of patients' reflexivity only in the rare cases where the opportunity to synchronize and synergize individual reflexivities is offered; on the other hand, this occurs only when a group of patients - motivated by the absence of an effective medical therapeutic solution - allows it.
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https://hal.archives-ouvertes.fr/hal-01964744
Contributor : Olivier Las Vergnas <>
Submitted on : Sunday, December 23, 2018 - 2:20:28 PM
Last modification on : Tuesday, April 27, 2021 - 3:19:50 AM
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Olivier Las Vergnas, Emmanuelle Jouet, Sophie Renet. Déploiement de la démocratie sanitaire : point d’étape et typologie de la prise en considération de la réflexivité collective des malades et autres personnes concernées (Version longue, texte mis à jour en Mars 2018). 85e congrès de l'ACFAS Symposium 517 - Réflexivité collective : quels processus et effets?, May 2017, Montreal (Univ MacGill), Canada. ⟨hal-01964744⟩

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