Prenatal screening of Down Syndrome: elaboration of an information document for pregnant women

Abstract : Context . All pregnant women should be informed of the possibility of a prenatal screening for Down syndrome. The underlying reasons for performing such screening are complex and often misunderstood. We wanted to draw up an information leaflet on prenatal screening for Down syndrome, which would be given to pregnant women by caregivers. The leaflet was intended to improve the understanding of patients on the prenatal screening for Down syndrome in order to help them making an informed decision. Method . The drawing up of the leaflet followed the recommended methodology of the French National Authority for Health: 1) drafting of a first version and improvement threw a working group composed by researchers, doctors and patients; 2) assessment of the information leaflet by caregivers; 3) proofreading of the documents by linguists. Results . At the end of the first step, professionals and users prepared two documents: a leaflet for the use of patients and a diagram for support in the consultation. In the second step, these two documents were assessed by 27 professionals (midwives, general practitioners and obstetricians). These profession- als sub- mitted the documents to patients during consultations. Changes were made to the documents. In the third step, a team of linguists improved the use of words and sentencing without any changes in the content. Discussion . This project allowed the creation of a leaflet providing information on Down syndrome and prenatal screening. The purposes are to inform women, and avoiding anxiety, encouraging women and couples to reflect on the process and raise awareness that all stages of the prenatal screen- ing involve a per- sonal choice. This document should be updated along with the development of new diagnostic techniques, such as the sampling of circulating fetal DNA in maternal blood.
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https://hal.archives-ouvertes.fr/hal-01782220
Contributeur : Jérôme Goffette <>
Soumis le : mardi 1 mai 2018 - 13:10:52
Dernière modification le : mercredi 31 octobre 2018 - 12:24:17

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  • HAL Id : hal-01782220, version 1

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Jérôme Goffette, Marie Flori, Marion Lamort-Bouché, Corinne Perdrix, Agnès Laville, et al.. Prenatal screening of Down Syndrome: elaboration of an information document for pregnant women. Exercer, 2016, pp.100-105. 〈hal-01782220〉

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