Effets du diagnostic d’infection au VIH sur la participation sociale : enjeux de l’application du Processus de Production du Handicap à une maladie chronique

Abstract : This article aims to specify the challenges related to adapting the Disability Creation Process (DCP) model to the experience of chronic disease, specifically Human immunodeficiency virus (HIV). In this perspective, a conceptual clarification is proposed because the DCP is mainly used to study populations in situations of disability due to motor, sensory, mental or behavioral disabilities. However, this model seems to be able to adequately read the specific experience of HIV, and help to understand differently life trajec-tories of people living with HIV (PLHIV). Indeed, HIV infection, despite its status as a "chronic disease", continues to contribute to the risk of social isolation. Body modifications induced by the disease or its treatment has an impact on how others view PLHIV. They expose the visibility of HIV status and, ultimately, the fear of social exclusion. In this respect, the analysis of the DCP may allow us to understand the varia-tions in the quality of social participation and identify the phases of vulnerability by focusing on body image in particular induced by the infection or treatments. This approach provides the opportunity for new insight into the influence of social environments (particularly health management or community support) with re-gards to the lifestyle and the daily experiences of socially disadvantaged people.
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Journal articles
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https://hal.archives-ouvertes.fr/hal-01681423
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Submitted on : Thursday, January 11, 2018 - 4:25:50 PM
Last modification on : Thursday, October 3, 2019 - 3:44:20 PM

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  • HAL Id : hal-01681423, version 1

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Sylvain Ferez, Isabelle Wallach, Charles Gaucher, Stéphane Héas, Sébastien Ruffié, et al.. Effets du diagnostic d’infection au VIH sur la participation sociale : enjeux de l’application du Processus de Production du Handicap à une maladie chronique. Développement humain, handicap et changement social, RIPPH/Presses université de Laval, 2015, Sexualité, Handicap et droits humains, 21 (2), pp.75-88. ⟨hal-01681423⟩

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