Skip to Main content Skip to Navigation
Journal articles

Toward a roadmap in global biobanking for health

Abstract : Biobanks can have a pivotal role in elucidating disease etiology, translation, and advancing public health. However, meeting these challenges hinges on a critical shift in the way science is conducted and requires biobank harmonization. There is growing recognition that a common strategy is imperative to develop biobanking globally and effectively. To help guide this strategy, we articulate key principles, goals, and priorities underpinning a roadmap for global biobanking to accelerate health science, patient care, and public health. The need to manage and share very large amounts of data has driven innovations on many fronts. Although technological solutions are allowing biobanks to reach new levels of integration, increasingly powerful data-collection tools, analytical techniques, and the results they generate raise new ethical and legal issues and challenges, necessitating a reconsideration of previous policies, practices, and ethical norms. These manifold advances and the investments that support them are also fueling opportunities for biobanks to ultimately become integral parts of health-care systems in many countries. International harmonization to increase interoperability and sustainability are two strategic priorities for biobanking. Tackling these issues requires an environment favorably inclined toward scientific funding and equipped to address socio-ethical challenges. Cooperation and collaboration must extend beyond systems to enable the exchange of data and samples to strategic alliances between many organizations, including governmental bodies, funding agencies, public and private science enterprises, and other stakeholders, including patients. A common vision is required and we articulate the essential basis of such a vision herein.
Document type :
Journal articles
Complete list of metadata

https://hal.archives-ouvertes.fr/hal-01262998
Contributor : Kim Coppens Connect in order to contact the contributor
Submitted on : Wednesday, January 27, 2016 - 12:46:00 PM
Last modification on : Thursday, February 7, 2019 - 2:53:25 PM

Links full text

Identifiers

Collections

Citation

J. R. Harris, P. Burton, B. M. Knoppers, K. Lindpaintner, M. Bledsoe, et al.. Toward a roadmap in global biobanking for health. European Journal of Human Genetics, Nature Publishing Group, 2012, 20 (11), pp.1105-11. ⟨10.1038/ejhg.2012.96⟩. ⟨hal-01262998⟩

Share

Metrics

Record views

80