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Particularismes de la recherche technologique au profit des personnes présentant une maladie d'Alzheimer ou un syndrome apparenté

Abstract : Technological research for those suffering Alzheimer disease or related syndromes is different both from regular technological and medical research. We are studying both the user its tool as one only topic. The cognitive disease has an impact on the structure of the study as well as on how the user will interact with the tool. i.e.: it will modify the participation of the user (consent, difficulties to adapt, tiredness...), cause the irruption of the caregivers in the user’s way of life. This com-plex environment requires a multidimensional, multidisciplinary approach framed in a common research goal. The researchers must share an embedded ethical part in their research. The iterative user-centred approach, in our lab, develops in four steps: brain-storming, focus groups, living lab and true-life lab. L’approche itérative centrée utilisateur qui va, pour notre laboratoire, comporter quatre étapes, du plus amont au plus proche de la mise en service : brain-storming, focus groups, living lab puis true-life lab (« vie vraie »).Iterations may imply a compleat step down to the previous step or apply only to a partial hypothesis we could not verify. The true-life lab is a survey of the deployment of the tool in the prospect, uncontroled, use envi-ronment (as opoosed to a controled living lab environment); it will show acceptance and use issues as well as technical robustness. The true-life has four steps: election of the ecosystem, technical deployment, scenario based tests and assessed free use. Success of the true-life lab step will allow clinical trials with the tool.
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https://hal.archives-ouvertes.fr/hal-01231738
Contributor : Open Archive Toulouse Archive Ouverte (oatao) <>
Submitted on : Friday, November 20, 2015 - 3:58:52 PM
Last modification on : Monday, June 28, 2021 - 1:34:57 PM
Long-term archiving on: : Friday, April 28, 2017 - 9:23:30 PM

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  • HAL Id : hal-01231738, version 1
  • OATAO : 12610

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Pierre Rumeau, Nadine Vigouroux, Frédéric Vella, Blandine Boudet, Thérèse Giacobini. Particularismes de la recherche technologique au profit des personnes présentant une maladie d'Alzheimer ou un syndrome apparenté. Workshop Alzheimer, Approche pluridisciplinaire : De la recherche clinique aux avancées technologiques (WS-ALZHEIMER 2013), Jan 2013, Toulouse, France. pp.1-10. ⟨hal-01231738⟩

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