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Archives ouvertes de la Sociologie une collection proposée par Eliane Daphy |
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Archives ouvertes de la Sociologie une collection proposée par Eliane Daphy |
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| HAL: halshs-00702088, version 1 |
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| The dynamics of causes and conditions: the rareness of diseases in French and Portuguese patients' organizations' engagement in research |
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| Vololona Rabeharisoa 1Michel Callon 1 |
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| (2012) |
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| Highlights the emergence of a "hybrid collective model" of collaboration between patients and experts through a systematic study in the field of rare diseases in France and Portugal, with attention to the reflexive work carried out by patients' organizations on the notion of rareness. |
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| 1: | Centre de sociologie de l'innovation (CSI) |
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CNRS : UMR7185 – MINES ParisTech - École nationale supérieure des mines de Paris |
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| 2: | London School of Economics and Political Sciences |
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London School of Economics and Political Sciences |
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| 3: | University of Coimbra |
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University of Coimbra |
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| Subject | : | Humanities and Social Sciences/Sociology |
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| patients' organizations – rare diseases – France – Portugal – hybrid collective model – delegation model – singularization-generalization |
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| Attached file list to this document: | |||||
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| halshs-00702088, version 1 | |
| http://halshs.archives-ouvertes.fr/halshs-00702088 | |
| oai:halshs.archives-ouvertes.fr:halshs-00702088 | |
| From: Fabian Muniesa | |
| Submitted on: Tuesday, 29 May 2012 11:12:39 | |
| Updated on: Wednesday, 5 December 2012 14:13:55 | |
