Proposal for a European Public Health Research Infrastructure for Sharing of health and Medical administrative data (PHRIMA).

Anita Burgun (1) , Dina V Oksen (1) , Wolfgang Kuchinke (2) , Hans-Ulrich Prokosch (3) , Thomas Ganslandt (4) , Iain Buchan (5) , Tjeerd van Staa (5) , James Cunningham (5) , Marianne L Gjerstorff (6) , Jean-Charles Dufour (7) , Jean-Francois Gibrat (8, 9) , Macha Nikolski (10, 11) , Pierre Verger (12) , Anne Cambon-Thomsen (13) , Cristina Masella (14) , Emanuele Lettieri (14) , Paolo Bertele (14) , Marjut Salokannel (14) , Rodolphe Thiébaut (15) , Charles Persoz (1) , Geneviève Chêne (1) , Christian Ohmann (1)

1 AVIESAN - Alliance Nationale pour les Sciences de la vie et de la Santé [Paris]
2 Heinrich Heine Universität Düsseldorf = Heinrich Heine University [Düsseldorf]
3 Medical Informatics
4 Medical informatics
5 HeRC - Health eResearch Centre [Manchester]
6 Forsker Service
7 SESSTIM - U912 INSERM - Aix Marseille Univ - IRD - Sciences Economiques et Sociales de la Santé & Traitement de l'Information Médicale
8 MaIAGE - Mathématiques et Informatique Appliquées du Génome à l'Environnement [Jouy-En-Josas]
9 IFB-CORE - Institut Français de Bioinformatique - UMS CNRS 3601
10 LaBRI - Laboratoire Bordelais de Recherche en Informatique
11 CBIB - Centre de Bioinformatique de Bordeaux
12 AMU - Aix Marseille Université
13 LEASP - Epidémiologie et analyses en santé publique : risques, maladies chroniques et handicaps
14 Department of Management, Economics and Industrial Engineering
15 Epidémiologie et Biostatistique [Bordeaux]

In Europe, health and medical administrative data is increasingly accumulating on a national level. Looking further than re-use of this data on a national level, sharing health and medical administrative data would enable large-scale analyses and European-level public health projects. There is currently no research infrastructure for this type of sharing. The PHRIMA consortium proposes to realise the Public Health Research Infrastructure for Sharing of health and Medical Administrative data (PHRIMA) which will enable and facilitate the efficient and secure sharing of healthcare data.

Mots clés: research infrastructure; Europe; data sharing; public health

Domaines: Sciences du Vivant [q-bio]

Anita Burgun, Dina V Oksen, Wolfgang Kuchinke, Hans-Ulrich Prokosch, Thomas Ganslandt, et al.. Proposal for a European Public Health Research Infrastructure for Sharing of health and Medical administrative data (PHRIMA).. Studies in Health Technology and Informatics, 2015, 216, pp.1005. ⟨10.3233/978-1-61499-564-7-1005⟩. ⟨hal-01232643⟩